Guest Blogger: Campbell’s mom, Kim
Kim's daughter Campbell (or, as we know her, Soup!) was a hero at our 2013 Heroes Art Ball. If you've driven on 95, you've seen her beautiful smiling face on a billboard for Children's Hospital of Richmond at VCU. She's become an ambassador for the childhood cancer community in Richmond. We are proud to have her as part of the Connor's Heroes family.
A lot of people describe the experience of having a child diagnosed with cancer as like a tornado. It was like that for me. When I was told that my daughter had leukemia, life started to spin out of control. Every routine my family once had was totally disrupted. We eventually found our new normal. While we were spinning, there were lots of people there to help. That was nearly four years ago. I often find myself wondering if I ever properly thanked those that helped the most. Connor's Heroes definitely deserves that thanks.
♦ Thank you for the backpack you gave us the day after my daughter's diagnosis. It was full of practical necessities for life in a hospital and sent a clear message that we were not alone in this scary, new world. We carried that backpack to every clinic trip we took for our three years of treatment.
♦ Thank you for faithfully serving lunch every Thursday on the 7th floor of the hospital as part of the Lunch Bunch. During long hospital stays, seeing a familiar face and eating an actual meal was more comforting than words can describe.
♦ Thank you for inviting our family to the circus. That outing was the first fun evening out of our house and the hospital that our family had since diagnosis. It helped us realize that we could still have fun.
♦ Thank you for sponsoring monthly art sessions with other families. They provide a time for my daughter to see “hospital friends” outside of that setting. Cancer kids share a very unique, strong bond.
♦ And lastly, a very heartfelt thank you to Lisa Goodwin. Thank you for not running far away from childhood cancer after your son finished treatment. (No one would have blamed you if you had.) Thank you for staying. Thank you for offering so much love, compassion, advocacy and energy to those of us with babies who are still fighting.
I am forever grateful for you.
2013 Heroes Art Ball
Art180 Opening
HEROES ~ art by Connor's Heroes youth affected by cancer. The opening of HEROES was more than I imagined. To see the art hanging in one of the city's top art studios during the excitement of RVA First Fridays was magical. The exhibit labels beautifully described the journey of the hero who created the piece. Many of our guests were overwhelmed with emotion. The show is open through April. You can visit ART 180, 10a-5p, Monday through Friday, or call 804.233.4180 for an appointment. The gallery is in Jackson Ward at 114 W. Marshall Street. We will auction each piece at the Heroes Art Ball, May 6, at Science Museum of Virginia. Proceeds benefit Connor's Heroes.http://501auctions.com/heroesartball
Decorating BMT Room for Toddler
Connor is a sweet baby who at the tender age of 19-months is having the second part of his treatment protocol. He's fighting Medulloblastoma. This is the most common malignant brain tumor of childhood, and it accounts for about 20 percent of all childhood brain tumors. It is slightly more common in boys than girls. Our hero volunteer, Lindsay, decorated his room with his favorites: Winnie-The-Pooh and Curious George. She filled his room with colorful lights and his backpack with beautiful picture books. Your gift to Connor's Heroes gives Lindsay the resources she needs to purchase decorations for Connor's room. Hospital staff tell us that these decorations ease a family's anxiety. If you would like to volunteer to decorate rooms for our young patients, email Erin, our program director, at erin@connorsheroes.org.
Hero Family Helping Others
Another hero decides to "Pay It Forward" and use her battle against childhood cancer to help other cancer patients in Richmond. Aida is one of our newest heroes. She was diagnosed with ALL in February. She is also a budding artist. She designed this colorful, fun shirt for an upcoming charity run. Her family will donate proceeds from sales of this shirt to Connor's Heroes. Online sale ends March 30th! You can place your order on their secure website.
ALL means Acute Lymphoblastic Leukemia. It is the most common type of childhood cancer. According to the American Cancer Society, about 2,700 children are diagnosed with leukemia in the United States each year. It is the most common diagnosis of our Heroes. Aida has a strong support network who are helping the family through her treatment. Connor's Heroes is reaching out to fill in the gaps and assist when they are in clinic or the hospital.
Help Aida's Army raise money for Connor's Heroes by ordering your shirt. Online sale ends March 30th!
March Sunday Funday
We had a full house for our Sunday Funday. Word is getting around to our hero families that these art sessions are a fun, creative time for our Hero patients, their siblings, parents and volunteers. Twenty children came to the most recent session! The children worked together to create pieces of art for the Heroes Art Ball auctions. Looking at these photos, you'll see the joy that is expressed in their art. You can hang joy and inspiration on your wall by coming to the Heroes Art Ball and making the winning bid!
A Journal That Inspires
Katie was finally discharged from the hospital after her bone marrow transplant. If you've followed Courage For Katie, Katie's mom has shared daily quotes of inspiration. Where is she finding these quotes? They are in the Bone Marrow Transplant journal created by Connor's Heroes. Connor's Heroes created this journal so our hero parents had an easy way to track the daily medications, exams, scans, tests, visitors and medical staff who manage their child's transplant. Lisa used her experience as a cancer mom in creating this journal. She wanted a notebook that was helpful but not overwhelming. Katie's mom agrees. The daily quotes were an added touch to remind our families that they are not alone. Good luck, Katie!
Guest Blogger: Volunteer Room Decorator, Lindsay B.
Lindsay is a superhero when it comes to decorating a hospital room of a young cancer hero. She has a knack for transforming the solemn walls and dull furnishings into a bright, cheery, magical place. Hospital staff tell us that Connor’s Heroes' room decorations have a positive influence on the emotional outlook of the child who’s starting the exhausting and long process of a bone marrow transplant. As Lindsay shares below, decorating a child’s hospital room has greatly affected her as well. One patient, in particular, has made a difference in her life.
I guess you could call me a “seasoned” room decorator. I have decorated more than eight rooms on the Bone Marrow Transplant floor. Each room means something different to me than the last. Erin and Lisa share a few facts about the child - favorite colors, cartoon characters, sports teams or celebrities. I get an idea for a theme and then I run with it. Actually, I get a little carried away! Lauren’s room became a “Frozen” explosion that made you want to sing “Let It Go!” when you visited. Katie walked into a room filled with the adorable Hello Kitty that she loves so much. Sheridan discovered a cool, calming underwater scene.
Decorating is more than hot pink sparkles, streamers, toys, and twinkle lights. I create a sanctuary where Lauren, Katie, Sheridan and all our heroes find comfort, feel special, and, most importantly, feel loved. I thank Connor’s Heroes for allowing me to bring smiles to our sweet, courageous, and wonderful heroes during their darkest hours. Hundreds of volunteers go out of their way to lend a helping hand and to say "We are here."
Walking into a hospital, where a patient may spend weeks, if not months, is extremely difficult for anyone, regardless of their age. One, 19-year-old D’Marco, had a big effect on me. His plans for college and playing football are on hold since his diagnosis. When I decorated his room, I wanted it to inspire the fighting spirit he needs for his brave battle. He opened my eyes to the important things in life: hold the ones you love close, never take anything for granted, and always lend a helping hand when you can.
I have been a part of Connor’s Heroes for more than three years. I learned so much about childhood cancer and how it affects the day-to-day life of these families. I take comfort knowing Connor’s Heroes makes sure they are not alone. These children and their families are an inspiration to me. I have the utmost respect for them. My volunteer experience with Connor’s Heroes has taught me a lot about myself and the struggles others go through. As I decorate a room, I often think of a quote from Plato: “Be kind, for everyone you meet is fighting a hard battle.” Thank you, Connor’s Heroes for letting me fight along with your cancer heroes.
Shop on Amazon? Donate to Connor’s Heroes
If you shop on Amazon, did you know that you can automatically donate a portion of your purchase to help our Hero Families? You log on to their charitable giving site, http://smile.amazon.com/ch/20-4992632, and select Connor's Heroes as your charity! Shop like you normally do and every quarter we'll receive a check. Remember to bookmark http://smile.amazon.com/ch/20-4992632
Link In with Connor’s Heroes
Connor's Heroes now has a company profile on LinkedIn. Whether you are currently involved with Connor's Heroes or previously, please follow our company profile. We'll share volunteer opportunities, collaborations with other businesses and special events. You are already our strongest advocates for raising awareness of childhood cancer patients treated in Richmond. Through LinkedIn, you'll showcase your volunteer service and champion our cause across your professional networks.
With the addition of LinkedIn, you can find Connor's Heroes on the most popular social networks. Are you connected?
Honor Your Hero
How fitting that the day after Valentine's Day is International Childhood Cancer Day. It is the day to draw attention to more equitable and better access to treatment and care for all children with cancer, everywhere. In Richmond, every week, a child is diagnosed with cancer. The graphic is made up of the names of the children who Connor's Heroes gave financial and emotional assistance so far this year! If there is a cancer hero in your world, why not honor him/her with a donation to Connor's Heroes today? Every dollar you give will help these and all the children who are in Richmond for treatment. You will make sure no family faces their child's cancer alone. https://www.connorsheroes.org/donate